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Thursday 7 March, 2019

08.00-09.00  Registration & Welcome Coffee – Hall & Kapittelzaal


09.00-09.10  Welcome by the Chair of the Scientific Committee – Kenneth Chambaere (BE) – Refter (Plenary Hall)

09.10-09.30  Introduction by Jean-Jacques De Gucht (BE) – Member of the Flemish Parliament (Liberal Party)

Plenary 1: Latest Developments in Assisted Dying Around the World

Chair: Kenneth Chambaere (BE)

09.30-10.00  Developments in European countries – Agnes van der Heide (NL)

10.00-10.30  Recent developments and the future of MAiD in Canada – Jocelyn Downie (CAN)

10.30-11.00  A review of developments in Australia – Lindy Willmott (AUS)

11.00-11.15  Comfort Break

11.15-12.00  Gobal Panel – Moderator Freddy Mortier (BE) – Members: Agnes van der Heide (NL), Jocelyn Downie (CAN), Lindy Willmott (AUS), Luc Deliens (BE) & Thaddeus Pope (USA)

12.00-13.00  Lunch – Kapittelzaal

Parallel Sessions 1


Refter (Plenary Hall) Zaal Rector Vermeylen Oude Infirmerie Priorzaal
MAiD in Canada
2 years of experience
Chair: Stefanie Green (CAN)
Chair: Freddy Mortier (BE)
Chair: Constance MacIntosh (CAN)
Chair: Thaddeus Pope (USA)
Stefanie Green, Ellen Wiebe, Shanaaz Gokool & Tanja Daws (CAN) Euthanasia embedded in palliative care?
Jan Bernheim (BE)
Cognitive Distortions and Capacity in MAID Requests where Mental Illness is Present
Justine Dembo (CAN)
Bioethical and legal dilemmas on hunger strike in prison settings
Maria Ciruzzi (ARG)
Addressing the ‘pillarization’ and the institutional shaping of the requests for euthanasia in Belgium: a sociological approach
Natasia Hamarat (BE)
Executive dysfunction and capacity for medical decision-making in MAID Requests
Lilian Thorpe (CAN)
VSED for Advanced Dementia Patients in the US
Robert Rivas (USA)
Euthanasia in Italy: A battle between religion and secularism
Johannes Agterberg (IT)
Rights! Freedom! Autonomy! Capacity?
Peter Saul (AUS)
Primum non nocere: medical liability in end-of-life scenarios
Vera Lúcia Raposo (CHN)
A new law in Taiwan: the convergence of legal capacity and mental capacity in Patient Autonomy Act
Wan-Ting Hsieh (TWN)

14.30-15.00  Coffee Break – Kapittelzaal

Parallel Sessions 2


Refter (Plenary Hall) Zaal Rector Vermeylen Oude Infirmerie Priorzaal
Chair: Thierry Vansweevelt (BE)
Chair: Bregje Onwuteka-Philipsen (NL)
Chair: Agnes van der Heide (NL)
Chair: Luc Deliens (BE)
Making Sense of Medical Aid in Dying: how physicians in Québec (Canada) experience MAiD in relation to the ordinary practice of medicine
Samuel Blouin (CAN)
Slippery slope in the Netherlands?
Laura De Vito (NL)
Transforming Advance Care Planning Australia, a collaborative national effort
Linda Nolte (AUS)
Assisted dying laws in Victoria: Restricting discussions about end of life options
Lindy Willmott (AUS)
The physician’s role in medical aid-in-dying: perpectives from Vermont
Mara Buchbinder (USA)
Study on denied requests for euthanasia submitted at the End-of-Life Clinic
Caroline Van den Ende (NL)
Advance directives: What does a campaign of loco-regional public debates reveal of citizens’ perception of them?
Stéphanie Pierre (FR)
The Waxing and Waning of the Informed Consent Principle in the Law Governing End of Life Decision-making in Canada
Thomas McMorrow (CAN)
Clinicians’ perspectives, and willingness to participate in voluntary assisted dying in Victoria, Australia
Karen Detering (AUS)
Factors associated with requesting and receiving euthanasia: A nationwide mortality follow-back study with a focus on psychiatric disorders, dementia and an accumulation of health problems related to old age Kirsten Evenblij (NL) The cost-effectiveness of advance care planning for older adults with end-stage kidney disease
Marcus Sellars (AUS)
Deployment of ‘the dying’: Voluntary assisted dying in the Australian state of Victoria
Courtney Hempton (AUS)
Health Care Professionals’ Perspectives on Medical Assistance in Dying
Hope Fast (CAN)
Euthanasia in Belgium: Shortcomings of the law and its application and of the monitoring of practice
Sigrid Sterckx (BE)
Representing the collective voice of the newly emerging MAiD community in Canada
Liana Brittain (CAN)

16.30-16.45  Comfort Break

Plenary 2: Conscientious Objection

Chair: Thierry Vansweevelt (BE)

16.45-17.15  Let Thy Conscience Be Thy Guide—But Whose Conscience Wins? Personal and Institutional Objections to Providing MAID – Daphne Gilbert (CAN)

17.15-17.45  Conscientious objections: Can health institutions legally refuse end-of-life care treatments? Sylvie Tack (BE)

18.00-20.00 Reception at Ghent Town Hall
Stadhuis Gent, Botermarkt 1, 9000 Ghent

Friday 8 March, 2019

08.30-09.00  Welcome Coffee – Kapittelzaal

Parallel Sessions 3


Refter (Plenary Hall) Zaal Rector Vermeylen Oude Infirmerie Priorzaal
Chair: Ben White (AUS)
Chair: Joachim Cohen (BE)
Chair: Eliana Close (AUS)
Chair: Jocelyn Downie (CAN)
Withdrawing and withholding treatment in a post-best interests world
James Cameron (AUS)
Staff Positions on End-Of- Life Treatment in patients with incurable diseases Rina Gabison (ISR) Legal and ethical challenges of new media in advance directives
Hui Yun Chan (UK)
When Unbearable Suffering Incites Psychiatric Patients to Request Euthanasia: a Qualitative Study
Monica Verhofstadt (BE)
Medical futility at the end-of-life: an Australian policy analysis
Eliana Close (AUS)
Non-beneficial treatment at the end of life in a palliative care population with cancer: a systematic review of reasons
Marleen Moors (NL)
Doctors’ perspectives on adhering to advance care directives when making medical decisions for patients with chronic disease: an interview study in a Melbourne metropolitan hospital
Karen Detering (AUS)
Public and physicians’ support for euthanasia in people suffering from psychiatric disorders: A cross-sectional survey study
Kirsten Evenblij (NL)
To eat or to die: a crucial dilemma in Elderly
Véronique Fournier (FR)
What do people with life-limiting illness considering euthanasia/assisted dying think about treatments at the end-of-life?
Jessica Young (NZ)
Prevalence of advance care directives among older Australians accessing health and residential aged care services: multi-centre audit study
Linda Nolte (AUS)
Perspectives from mental health professionals in Saskatchewan, Canada about the potential expansion of Medical Assistance in Dying to patients with mental illness
Cadence MacPherson (CAN)
The Vincent Lambert case: An illustration of the limits of an EoL law to resolve all ethical clinical issues
Denis Berthiau (FR)
Medical Futility Dispute Resolution Options in the United States: Law & Ethics Fundamentals
Thaddeus Pope (USA)
The association between knowledge of end-of- life options and attitudes and behaviors regarding advance directives in Switzerland: Evidence from a National Population-based Study
Sarah Vilpert (SWI)

10.30-11.00  Coffee Break – Kapittelzaal

Plenary 3: Nutrition and Hydration at the End of Life

Chair: Constance MacIntosh (CAN)

11.00-11.30  Withdrawing Clinically Assisted Nutrition and Hydration: New Supreme Court decision and professional guidance in England and Wales – Celia Kitzinger (UK)

11.30-12.00  VSED Divulged: Legal, Ethical, and Clinical Status of the Voluntarily Stopping Eating and Drinking Exit Option – Thaddeus Pope (USA)

12.00-13.00  Lunch – Kapittelzaal

Parallel Sessions 4


Refter (Plenary Hall) Zaal Rector Vermeylen Oude Infirmerie Priorzaal
Chair: Karen Detering (AUS)
Chair: Greg Mewett (AUS)
Chair: Lara Pivodic (BE)
Chair: Aline De Vleminck (BE)
Palliative sedation at the end of life: state-of-the art, challenges and opportunities for improvement
Lenzo Robijn (BE)
Understanding the concept of suicide in an age of assisted dying (a global issue through the lens of Canadian experience)
Jocelyn Downie (CAN)
Termination of life based on a written request: what do the Regional Review Committees say?
Laura De Vito (NL)
Dying on an emergency department and the decisions at the end-of-life
Annelies Vermeir (BE)
Deep and continuous sedation until death: A first national restrospective survey in France Sandrine Bretonnière (FR) Suicide prevention in an age of medical assistance in dying: a Canadian perspective
Mona Gupta (CAN)
Views on assisted dying for people with dementia: a Netnographic approach
Aida Dehkhoda (NZ)
Access to Home Palliative Care: pilot project in Portugal
Guida Da Ponte (POR)
Development of an information leaflet for palliative sedation
Frank Spichiger (SWI)
Suicide or not suicide: how people involved in conversations about assisted suicide distinguish assisted suicide from suicide in Switzerland
Samuel Blouin (CAN)
Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies
Marcus Sellars (AUS)
Knowledge and attitude to end of life choices including medical assistance in dying (MAiD) in marginalized indigenous and non-indigenous people in Canada
Ellen Wiebe (CAN)
Moral Distress and Autonomy at the End of Life
Dena Davis (USA)
Restricted palliative care
Marius Ciurlionis (LIT)

14.30-15.00  Coffee Break – Kapittelzaal

Plenary 4: Presure Points in End-of-Life Decisions Making

Chair: Joachim Cohen (BE)

15.00-15.30  Dementia, capacity and advance directives: current developments in the Netherlands – Bregje Onwuteaka-Philipsen (NL)

15.30-16.00  Palliative sedation as an alternative to assistance in dying? – James Downar (CAN)

16.00-16.15  Comfort Break

Parallel Sessions 5


Refter (Plenary Hall) Zaal Rector Vermeylen Oude Infirmerie Priorzaal
From legislative provisions on End of Life to application on clinical grounds: Which ethical challenges? A European – French, German, Italian – comparative perspective
Chair: Véronique Fournier (FR)
Issues of Overlap between “Suicide” and “Physician Aid in Dying”
Chair: Margaret Battin (USA)
Chair: Kenneth Chambaere (BE)
Chair: James Downar (CAN)
Véronique Fournier (FE), Gerald Neitzke (GER) & Renzo Pegoraro (IT) Margaret Battin (USA), Joachim Cohen (BE), Jocelyn Downie (CAN), Agnes van der Heide (NL), Ellen Wiebe (CAN) & Lindy Willmott (AUS) Completion of medical certificates of death after an assisted death: An environmental scan of practices
Janine Brown (CAN)
Consensus, controversies and dilemmas concerning the definition of death in the USA
Betty Levin (USA)
  An Analysis of Euthanasia Statistics in Various Countries
Miho Tanaka (JPN)
Brain Death and the Law: Hard Cases and Legal Challenges
Thaddeus Pope (USA)
    Drugs used for euthanasia: A repeated Population-Based Mortality Follow-Back Study in Flanders, Belgium
Sigrid Dierickx (BE)
Final death
Helen Towers (USA)
Medical Assistance in Dying in Canada: An assessment of the evidence with respect to advance requests, mature minors, and where a mental disorder is the sole underlying medical condition
Mona Gupta (CAN)

18.30-20.30 Congress Dinner at Ghent City Museum
STAM, Godshuizenlaan 2, 9000 Ghent
Free museum visit from 18.00 (until midnight).
Welcome drink from 18.30.
Congress dinner starts at 19.00.

Saturday 9 March, 2019

08.30-09.00  Welcome Coffee – Kapittelzaal

Parallel Sessions 6


Refter (Plenary Hall) Zaal Rector Vermeylen Oude Infirmerie Priorzaal
Chair: Sandrine Bretonnière (FR)
Chair: Kim Beernaert (BE)
Chair: Lindy Willmott (AUS)
Chair: Mona Gupta
Developing a medical assistance in dying curriculum in specialty residency training programs
Susan Macdonald (CAN)
Neonatologists’ and neonatal nurses’ attitudes towards perinatal end-of-life decisions
Laure Dombrecht (BE)
A re-examination of the compatibility of the English blanket ban on assisted suicide with the prohibition on ill-treatment in article 3 of the European Convention on Human Rights
Stevie Martin (UK)
Policy development in contested spaces: drivers of change and evidence based policy
James Cameron (AUS)
Impact of a Unique Canadian approach to Medical Assistance in Dying by Nurse Practitioners in the patient’s home environment
Calvin Pelletier (CAN)
Every single day we resuscitate her… what are we doing, where are we going? Modifiable factors for improving end-of-life decision making for neonatologists, nurses, and parents in the Neonatal Intensive Care Unit
Veerle Piette (BE)
The semantics of the ‘right to assisted dying’ Adam McCann (UK) The Voluntary Assisted Dying Act 2017: the role of the public service in significant government reform
Jackie Kearney (AUS)
Psychiatric Patients Requesting Euthanasia: Initiatives for Sound Clinical and Ethical Decision Making
Monica Verhofstadt (BE)
Age Distinction in Canada’s Bill C-14: Necessary or Discriminatory? Kathryn Morrison (CAN) Legal change on assisted dying revisited
Penney Lewis (UK)
Minors & MAiD: Canadian Law Reform Process & Debate
Contance MacIntosh (CAN)
A regulatory analysis of Victoria’s Voluntary Assisted Dying Regime
Ben White & Katrine Del Villar (AUS)
The fraught notion of a good death for children: Can a child ever really ‘die well’?
Bryanna Moore (USA)
Right-to-Die Society in Belgium: history & future
Marc Van Hoey (BE)
Guidelines-based regulation on end-of-life care decisions in Japan
Futoshi Iwata (JPN)

10.30-11.00  Coffee Break – Kapittelzaal

Plenary 5: The Long-Term View on End-of-Life Practice

Chair: Luc Deliens (BE)

11.00-11.30  Ethical reflection on what has passed: predictions for the future – Freddy Mortier (BE)

11.30-12.15  Global Panel: Moderator: Kenneth Chambaere (BE) – Members: Freddy Mortier (BE), Jocelyne Downie (CAN), Bregje Onwuteaka-Philipsen (NL), Ben White (AUS) & Peggy Battin (USA)


12.15-12.30  Closing by Co-Chair of the Scientific Committee – Luc Deliens (BE)

12.30-13.30  Lunch – Kapittelzaal